14 June 2018
This note is
to fulfil the transparency requirements under the General Data Protection
Regulation for health and care research regarding the use of personal
information in the ReQoL project.
The University
of Sheffield is the sponsor for this study based in the United Kingdom. We will
be using information from you in order to undertake this study and will act as
the data controller for this study. This means that we are responsible for
looking after your information and using it properly. The University of
Sheffield will keep information about you from the questionnaire, but cannot
identify who you are, as we do not have access to any of your personal details.
NHS Trusts will collect information from you for this research study in
accordance with our instructions. NHS Trusts will keep your name, NHS number
and contact details confidential and will not pass this information to The
University of Sheffield, we will only receive information without any
identifying information. The people who analyse the information will not be
able to identify you and will not be able to find out your name, NHS number or
contact details.
Your rights to
access, change or move your information are limited, as we need to manage your
information in specific ways in order for the research to be reliable and
accurate. If you withdraw from the study, we will keep the information about
you that we have already obtained. To safeguard your rights, we will use the
minimum personally-identifiable information possible.
